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Mary Bowman

so scary. I am so glad it turned out good for you. If people only knew what we have to go through when you have lupus. I am 43 yrs old and cannot work because of lupus and all the complications its caused and I have diabetes and in last 3 months it has caused arthritis in hands, back and neck so bad I can hardly do anything.

Shalonda Garcia

Mary I'm sorry you unable to work. I hope the arthritis gets better. Education is part of why I blog. Thank you for reading it and telling YOUR story.


Oh wow...going to take my baby aspirin right now!! I take it every now and then and I take the other medication once a day instead of twice. (plaqunil) Jesus...glad you are ok. I gotta be more compliant with my meds.... thank you for sharing!

Shalonda Garcia

RayShonda- Please be work on being compliant with your medications. I use myself as the example of what NOT to do!
Believe me my medication is a part of my routine - just as putting on my makeup. I do it so much now I don't even have to think about it anymore.


i know the feeling i got sick in 2005, as doctors were searching for what was wrong (a lymph gland biopsy first.. inflamed lymph glands all over my body led them to suspect cancer), not long after the biopsy i suffered a heart attack.. troops of specialists where brought through my room only the rheumy suspected lupus and he was right i was diagnosed with sle, antiphospholipid syndrome, and rheumatoid arthritis .... in the last 7 years added to the list osteoporosis and chronic heart failure .. most of the meds are yuck and don't seem to do much so i smoke pot as well :)

Shalonda Garcia

John you're the first man with Lupus that I know of with antiphospholipid syndrome. I'm sorry you have had such a hard time with being diagnosed. Does the pot help with your pain? How did you feel when/if you were taking pain meds vs marijuana?


I also have SLE and APS as well as fibromyalgia and sjogren's syndrome. I have to test my PT/INR levels twice a week on an at home monitor. My Coumadin levels are constantly changing and when my INR is low I have to give myself shots in the stomach of Lovenox. It's so frustrating, but I have had pulmonary embolism three times. Very scary.


You're right, APS is very scary! For me it's scarier than the fact that I have Class IV nephritis. Because the consequences are more immediate if there is an issue with coumadin levels or another clot.

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